ALS of Utica was founded by Sherry DePerno in March of 2003 and is approved by the IRS as a 501(c)(3) non-profit organization. All of the board and committee members are volunteers and receive no money for their time and dedication.

Carolyn DePerno (1941-1999)
Carolyn DePerno (1941-1999)

Our Mission:  ALS of Utica is committed to providing patients and families a guide to maneuver a diagnosis of ALS.  To inspire them to believe that their life does not have to be over as they know it, just different than planned.  Assurances that technology and nutrition can help to live longer, fulfilling lives.  Provide skills by which families and friends can raise money for patients and ALS of Utica along with knowing that no one will embark on this journey alone.  We are on hand to give emotional and financial support all while preserving the dignity of each patient.  We serve Oneida and Herkimer counties in New York State.

This organization was founded in memory of Carolyn DePerno (1941-1999). Carolyn lost her battle to ALS at 58 years old, just four months after being diagnosed.


ALS of Utica Board of Directors