PROGRAMS

WE HAVE LOCAL programs that will HELP YOU

Serving Oneida and Herkimer Counties in New York

PATIENT REGISTRATION

REGISTERED PATIENTS in Oneida & Herkimer counties in NY will have access to additional grant programs.  

wish grant

The Wish Grant Program is an monetary grant given to patients who have been debilitated by ALS. These funds can be used for anything that will improve the quality of your life or manage ALS easier.  

Estate planning grant through local elder law attorneys

It is critical that a family sits down with a specialized attorney upon an ALS diagnosis. ALS can be very costly to manage and caregivers will be needed. ALS of Utica has partnered with three Elder Law Attorneys and once approved, pays them directly for Estate Planning Services on behalf of our local REGISTERED ALS families. Standard insurance and Medicare will not cover home care needs when the time comes, these attorneys will look at other programs including Medicaid to get these needs covered. Never assume you will not qualify, utilizing trusts is a way to make these services available while protecting assets for the rest of the family. It is critical to start the process early, it can take 4-6 months to qualify. Other services included: Wills, Health Care Proxy, Power of Attorney.

PARTNERING ELDER LAW FIRMS
  • Bob Malpezzi at the Ward Arcuri Law Firm, 44 Oxford Rd, New Hartford, Ph: 315-797-7300
  • Rob Hilton at Hilton Estate Planning & Elder Law, 2100 Genesee St, Utica, Ph:315-624-9600 
  • Estate Planning Law Center, 555 French Rd, New Hartford, Ph: 315-793-3622
support groups
CAREGIVER’S SUPPORT GROUP

For those caring for a loved one that is currently battling ALS or has passed away from ALS. Please join us on the 3rd Wednesday of the month at 6pm at Homewood Suites by Hilton New Hartford (April–December only). Currently paused due to COVID.

Patient Advocate: Sue Giglio
Sue Giglio is a retired Registered Nurse having 38 years experience in healthcare. Sue’s experience included Medical/Surgical, Infection Prevention and Long Term Care. Sue lost her mom to ALS after a 6 month battle at the age of 59, she saw firsthand how difficult it was to obtain services and equipment during her mother’s illness. This is one of the main reasons she got involved with ALS of Utica, in the hope to help others in similar situations.

EMOTIONAL SUPPORT

ALS can be devastating on the entire family, if you are struggling and in need of support please reach out to us. Email us your name and best contact number and someone will get in touch with you as soon as possible.

Traid Center Loan Closet

ALS of Utica is proud to work with Traid Center Loan Closet at UCP. The Traid Center is a wonderful resource for our local area. They provide, store, and maintain equipment for those in need. If you have equipment needs, call 315-292-1968. Located at 675 Catherine St. Utica, NY 13501.